PURPOSE and GOALS
Every year, 320,000 women globally are diagnosed with uterine or endometrial cancer, and 76,000 women die of the disease due to barriers to care, obesity, drug-resistance and both racial and health disparities. The purpose of the Uterine Cancer Registry is to recruit women with a history of uterine and endometrial cancer to join a movement and call to action to drive advances in patient-centric uterine cancer research. Research performed using data from patients with the disease or condition of interest (in this case uterine or endometrial cancer) is the most likely to produce clinically meaningful results. The more people that sign up, the more effective the Registry will become.
Patients and survivors who join the Registry can collaborate directly in ongoing cancer research with clinicians, scientists, and many other types of professionals all working together to end uterine cancer. Together we can make the difference!
If you are a patient or survivor with uterine or endometrial cancer, please Join the Registry today.
If your loved one has uterine or endometrial cancer, please share our information about the Registry and encourage them to become a member.
To learn more about the diverse team of clinicians, scientists and other professionals who work for the Registry, click here.
With the help of people like you, the Uterine Cancer Registry will:
Study patient data to make rapid advancements in the prevention, early detection, and treatment of uterine or endometrial cancer including:
- Outcomes that are important to you in your treatment
- Improved monitoring capabilities for the spread of your cancer
- Better understanding of your response to treatments
- Perceptions about new cancer treatments called biologic therapies
- Symptoms that affected you most during treatment
- Effects on your family dynamics and work related issues
- Impact of lifestyle factors on your survival rates
- Barriers you experienced during your diagnosis and treatment
- Communication between you and your physicians as well as other health care professions
- Perceptions regarding quality of healthcare
- Ways to reduce barriers to access care
- Methods to lower stress and anxiety you feel to possibly improve the effectiveness of treatments
Serve as a community for patients, survivors, friends, family members and advocates to share their stories, learn from and help one another, pay tribute to those who have lost the fight, and raise awareness about uterine cancer. Community members may:
- Make connections with one another
- Provide support
- Share personal stories
- Pay tribute to those who have lost their battle with uterine cancer
- Get the word out about uterine cancer and the Registry
- Encourage others to advocate about uterine cancer and spread the word about the Registry
Engage in public activities related to awareness (i.e. National Race to End Women’s Cancer, Globe-athon to End Women’s Cancer and regional race and walk events hosted by Gynecologic Cancer Foundation, Globe-athon to End Women’s Cancer and other organizations.